On Monday afternoon, I had an appointment with my new Neurologist, now in St. Vincent's Hospital - no longer in Beaumont.
I wanted this change because I met both consultants from SV's and liked the way they approached the subject, and the researches they are involved in. I must say I did not like Beaumont very much. They all seemed a bit "distant" (consultant and assistants) and, besides, it was a bit too far away from where we live. The place was also a bit gloomy, and they had MS Clinics only once a month. Long waits too, tons of patients. Then I asked them to transfer me and so they did.
Well, I did not see the consultants yet - that will happen on 18th September. But I saw dr. Lisa Costello, who is a Neurology researcher there and she was quite nice. They also seemed to spend quite some time with the patients there, more than in my former Hospital. She asked me if I wanted to participate on a research they are doing there about T-cells, immune system and the possible causes of MS. I agreed. They took me for blood tests, I did not feel well because they really needed quite a lot (for the routine exams plus the DNA tests for the research). But then, the nurse took me to a room to rest and I was OK. Mark always with me, of course, he's such an angel...
Results of my visit were:
- Fatigue: there's no much to do about it, since I already tried all medications that could help (Symmetrel and Provigil) and they did not help me (as they do not help much people either, only a 20-30% chance of success, she told us). The last resource would be to start exercising. Only problem is to find some energy to start it, but hey, I always wanted to do some yoga. Now is time for that. Mark wants to go for yoga classes with me as well, so he can improve his flexibility. So...
- Aspartame and MS: she never heard about it (some crazy emails a friend of my Mom sent to her, blaming my addiction to Diet Coke as the culprit for my disease), and definitely there is no relation. I asked previous consultants and my GP and they said it's bullshit anyway. But you can imagine how my Mom pestered me about it: "I always told you Diet Coke was no good, blah-blah-blah and blah..."
- MRI scan: I will need a second one, since the time I've been diagnosed when I had the first. I did not like that idea much, because I would prefer not to see (or to know about) any changes that may have occurred with my lesions. But that's the praxis there. She will organise an appointment and let me know through a letter.
These are the news. I haven't been feeling good since yesterday and am home today. It's 6pm now, and after sleeping most of the day, I now feel a bit better.
Hasta la vista then!
Wednesday, March 15, 2006
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